Our first attempt at snow play...
We celebrated the January, Feburary and March birthdays for my family last weekend by sledding. Kamalee had been sick and was sleeping so we missed out on sledding down the big hill, but since we were all bundled we decided to pull her in the sled for a little bit. She didn't seem to mind or enjoy it much. Being sick may have put a little damper on it. But she did smile for a few pictures.
Kamalee and cousin Jordyn
This week I have been super busy trying to finish up projects and getting 'somewhat' organized for the first premier of PoshTales (which is next Saturday everyone, mark your calendars). And busy with doctors. Tuesday, Kamalee went to see her cardiologist. After an EKG, ECHO and whole work up...no news is good news!!!!! Everything is holding the same. There is a very small leakage but it hasn't increased. Some leakage is normal....dr. says it is rare to not have any. We just need to keep monitoring it to make sure it doesn't increase. We see him again in 6mo. then if all is the same we start looking at the long term situation. YAY! She will have to have a yearly check up, but if all goes well there hopefully is no more surgerires in her future. It is possible that after years of many heartbeats it could losen and wear and she made need a 'tune up' but we won't know until it happens. So we just pray her little heart holds strong!
Wednesday, we ventured to SF for another video swallow for Kamalee to be tested on her drinking of cups. I came prepared as our last visit didn't go well. The PT we had was horrible and didn't allow us to use our own bottle....blah, blah blah. Another story. Anyways I had 4 cups types to try. Kamalee did awesome, drank from all of them and the results were awesome!!!! GOODBYE mr. THICKENER!!!! She has officially kicked the thickener from her liquids. She passed all of her tests and could drink out of any normal sippie with thinned liquids. OH yay...she is staring to seem 'normal' in some ways! We don't have to worry about people just handing her something to drink anymore. What a releif. We shouldn't have to go to that dr. anymore. So as of today, we shouldn't have to see any 'extra' doctors other than the cardiologist once a year. I think we can handle that.
Third good news...I discovered Kamalee sprung yet another molar! Bottom this time. That makes 5 teeth. 3 being molars. So she looks like she doesn't have very many cause only 2 are in front. This one just snuck in with no warning. She is also working on an eye tooth on top. Hopefully she will get some front teeth soon.
Well we have a busy couple days planned and then are heading to MN for school with Justin on Monday. Better get my work done so we can go along!
This week I have been super busy trying to finish up projects and getting 'somewhat' organized for the first premier of PoshTales (which is next Saturday everyone, mark your calendars). And busy with doctors. Tuesday, Kamalee went to see her cardiologist. After an EKG, ECHO and whole work up...no news is good news!!!!! Everything is holding the same. There is a very small leakage but it hasn't increased. Some leakage is normal....dr. says it is rare to not have any. We just need to keep monitoring it to make sure it doesn't increase. We see him again in 6mo. then if all is the same we start looking at the long term situation. YAY! She will have to have a yearly check up, but if all goes well there hopefully is no more surgerires in her future. It is possible that after years of many heartbeats it could losen and wear and she made need a 'tune up' but we won't know until it happens. So we just pray her little heart holds strong!
Wednesday, we ventured to SF for another video swallow for Kamalee to be tested on her drinking of cups. I came prepared as our last visit didn't go well. The PT we had was horrible and didn't allow us to use our own bottle....blah, blah blah. Another story. Anyways I had 4 cups types to try. Kamalee did awesome, drank from all of them and the results were awesome!!!! GOODBYE mr. THICKENER!!!! She has officially kicked the thickener from her liquids. She passed all of her tests and could drink out of any normal sippie with thinned liquids. OH yay...she is staring to seem 'normal' in some ways! We don't have to worry about people just handing her something to drink anymore. What a releif. We shouldn't have to go to that dr. anymore. So as of today, we shouldn't have to see any 'extra' doctors other than the cardiologist once a year. I think we can handle that.
Third good news...I discovered Kamalee sprung yet another molar! Bottom this time. That makes 5 teeth. 3 being molars. So she looks like she doesn't have very many cause only 2 are in front. This one just snuck in with no warning. She is also working on an eye tooth on top. Hopefully she will get some front teeth soon.
Well we have a busy couple days planned and then are heading to MN for school with Justin on Monday. Better get my work done so we can go along!
1 comment:
Sounds like everything is going great!!! Isnt it awesome to say goodbye to the thickener!! Good luck on your premiere!!!
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